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About the organisation
The Butterfly Trust provides a broad range of services across Scotland for individuals and families who are affected by Cystic Fibrosis (CF). The nature of the charity's services focus on helping to delay progression of the condition, complementing clinical treatments available through the NHS. These include home visits from volunteer physiotherapists, massage for patients in hospital, a volunteer driver's service for hospital visits, 1:1 befriending for CF children from disadvantages backgrounds, family bereavement support and mentoring for young adults with advanced stage CF to help improve their adherence to treatments. A high proportion of the charity's beneficiaries are low income families. The charity is strategically involved in NHS Scotland's CF Managed Clinical Network, a relationship which is further enhanced through its use of volunteer, clinical specialists, enabling it to maximise use of financial resources.
About the award
Towards the organisation's running costs. A small staff team coordinates the work of the charity, managing relationships with a number of NHS Boards to maximise access and resources for their CF patients. Most of the charity's direct support services are delivered by volunteers, many of whom are health professionals working in a voluntary capacity.
Giving Team View: What we liked about this project
"This project demonstrates the value of partnership working with statutory agencies, in this case NHS Scotland's CF Managed Clinical Network. The approach helps to ensure that its services complement and support treatments which are available through the NHS."
How this would fit with our Giving Strategy 2016-19
In order to successfully apply for funding under our Giving Strategy 2016-19 (launched August 2016), applicants must demonstrate how their work will contribute to one or more of the themes within the Trust's three new funding strands.
Although granted prior to the strategy launch, this application would have been eligible under our new approach as a result of its fit with the following themes:
- Funding Strand: Care and Wellbeing
Funding Theme 2: Improving the health and wellbeing of children & young people affect by mental and/or physical ill health - Funding Strand: Care and Wellbeing
Funding Theme 3: Supporting adults with life limiting, long term health conditions or disability to overcome barriers and remain involved with their communities
To find out more details about all of our funding strands and themes, please download our Giving Strategy 2016-19.